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Desmoid Tumor And Gardner’s Syndrome

Do you know what it is?

The DESMOID TUMOR affects about 6 out of one million people per year and in particular young women. In case of mutation in the APC gene, GARDNER’S SYNDROME, this kind of tumor can be inherited from parents.

This is an ORPHAN tumor due to the lack of a specific medical treatment.
This is an AGGRESSIVE tumor due to the uncontrolled growing.
This is an UNPREDICTABLE tumor due to the high recurrence after surgical resection and  because it doesn’t respond always to the pharmacological treatments.
This is a PAINFUL tumor due to the ability of infiltrate muscles, organ and bones.
This is a CRUEL TUMOR because linked to the most beautiful experience for a woman: the pregnancy.

Do you have a Desmoid tumor? We are here to help you.

Find your Doctor
Find a Doctor specialized in Desmoids tumor: not all the doctors and surgeons know how to treat this rare tumor.
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Take part of all those events addressed to patients with Desmoid Tumor: sharing our hope and stories make us more unite! Find out what will be the next event: we are waiting for you ... do not miss it!
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